I am writing this while I am in need of a very long nap so if there are errors...please forgive me! Sunday night, Paul's parents were here visiting and about 4pm Ben had a seizure while he was awake. This is highly unusual as his seizures always happen when he is sleeping. He had two more within the next two hours and then had 9 while he was sleeping. I kept him home the next morning and he slept until 10 am and then went to school. He did great all day. I had put in a call to his doctor and was waiting for a call back. Tuesday, I still hadn't heard from the doctor and I picked him up early from the school to go to the dentist. He had a seizure in the waiting room and then two in the dentist chair so they cut his visit short. He had two more while we waited for Nate to get done with his appt. He continued to have them every 4-5 minutes...to make a very long story shorter...we ended up in the emergency room and by the time we got him sedated he had had 47 seizures. He was admitted to the pediatric ICU and they stopped the seizures and have started him on a new medication. His CT came back good but of course the EEG was abnormal but they feel we can control everything with medication. They also gave us a medication for PRN situations and for traveling. We came home about an hour ago and Ben is already sleeping and I am heading that way too.
