Wednesday, March 18, 2009

Ben's hospital stay


I am writing this while I am in need of a very long nap so if there are errors...please forgive me! Sunday night, Paul's parents were here visiting and about 4pm Ben had a seizure while he was awake. This is highly unusual as his seizures always happen when he is sleeping. He had two more within the next two hours and then had 9 while he was sleeping. I kept him home the next morning and he slept until 10 am and then went to school. He did great all day. I had put in a call to his doctor and was waiting for a call back. Tuesday, I still hadn't heard from the doctor and I picked him up early from the school to go to the dentist. He had a seizure in the waiting room and then two in the dentist chair so they cut his visit short. He had two more while we waited for Nate to get done with his appt. He continued to have them every 4-5 minutes...to make a very long story shorter...we ended up in the emergency room and by the time we got him sedated he had had 47 seizures. He was admitted to the pediatric ICU and they stopped the seizures and have started him on a new medication. His CT came back good but of course the EEG was abnormal but they feel we can control everything with medication. They also gave us a medication for PRN situations and for traveling. We came home about an hour ago and Ben is already sleeping and I am heading that way too.

9 comments:

Jason and Amanda said...

OH that is scary! I hope this medicine works well for him.

Co-chillin with the Roths said...

our prayers are with Ben and your family. Glad he's home.

Rachel said...

How terrifying!!!! Do they know why he has these seizures? I think I would go crazy if it was one of my kids!! I hope this medicine works and things get better for you all.

Amy said...

Oh no that is scary. I'm really sorry you had to go through that. You are so brave and so is he. We will keep Ben in our prayers.

Floyds in Alaska said...
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Floyds in Alaska said...

So glad they have found a med that is working AND they have given you a PRN one to boot. What a relief, I'm sure! I am in awe of your apparent calm in the face of all this. . . . You continue in our prayers as well.

renniemom said...

Thank you all for your concern and prayers. We are keeping our fingers crossed for this new medication...4th one is a charm right???

Dean Lorimer said...

Hopefully this new medication works for Ben. Do the doctors know what is causing his seizures?

Michelle said...

Not cool! I hope the new meds work better. That's got to be awful to go through.